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What this website is all about

Updated: 3 days ago

Welcome, and thanks for visiting my website! My name is Dustin, and I have FSGS - Chronic Kidney disease, Diabetes Mellitus and chronic sinusitis, to name a few. Through many years of struggling with my chronic diseases (I was first diagnosed with FSGS in 2004), I frequently questioned what I could do in my life to make the most of my medical conditions. I felt that while chronic disease had more or less ruled a large majority of my life, there had to be something I could do to use my experiences to make a lasting impact. 

I have been in love with writing all my life, especially creative fiction. As a young kid, I would sit at the kitchen table with my Grandma as I dictated exciting adventures that she would write in staple-bound paper books. I loved imagining superheroes fighting off bad guys and fulfilling extraordinary destinies. 

Nowadays, while I still write fiction, I also write about other types of heroes. These are the people that spend their lives fighting to give people like me a voice. Chronic disease advocates do amazing work in a variety of ways. They talk to legislature to change our laws to improve medical costs. They raise awareness through podcasts, social media and articles so that others can learn of the struggles we face. Others organize fund raisers to pay for research into new treatments. 

I decided that I, too, wanted to be one of those heroes. That is when it clicked for me. I decided to put my love of writing and my excitement for helping others with chronic diseases. I started writing journals, posting articles on social media and talking to others in the chronic disease community. 

This website is the cumulation of all those things. I have added my journal posts and writings in the main home page. I have my social media posts that I update through my Facebook account on the News Feed page.


However, this website isn't just about me. It is about all those people (you too!) who are dealing with chronic disease every day of their lives. It is about living with chronic disease but not allowing chronic disease to BE your life. For this, there is the forum page. I invite you to post in that section. I will periodically add topics in the forum section as well. I am excited to see your responses. 

Lastly, many of the links and posts on this website lead to some great advocacy organizations and people working to better the lives of chronic disease sufferers. I will do my best to list all of these great resources but feel free to check them out for yourself. Maybe you, too, will find an advocacy organization that speaks to your own talents as writing spoke to me. 

Thanks for visiting, and I hope to hear from you! 


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